Our purpose is to provide mutual support and education to the parents of children with cardiovascular disease.
One out of every 100 children born in the United States has a heart defect• 36,000 babies are born each year with one or more heart defects
• It's the most frequently occurring defect & the leading cause of birth defect related deaths
• Some defects are genetic but most are unknown
• pale, bluish, or dusky skin color
• poor weight gain
• tires easily during feeding
• sleeps more than average
• fast or labored breathing when at rest
• puffy face, hands, and/or feet
• often irritable and very difficult to console
August 28, 2010
Parent for Heart Meeting
Saturday August 28nd, 2010
• 10:30-12:30
• University of Minnesota Amplatz Children's Hospital
7 th Floor: Room 7-120 (Childcare on 8 th Floor: Bridges Board Room)
Annamarie Saarinen from 1 in 100 will be presenting:
Founder, Parent/Patient Advocate
1in100 was established to align resources and allies to support advocacy and policy initiatives.
*
Childcare Pizza and Parking Provided
Please RSVP by August 25th for childcare and attendance confirmation to
jmuller@embarqmail.com
Or Jen Muller (763)416-7839
more info...
Tell your story
We are still waiting for your stories. Sharing your experiences is a great way to help others as well as yourself.
